And an alarm clock made all the difference...

Our school district made a huge change in schedule on us this year. Last year Joey's school day was from 9-3:30. The afternoons were so short and packed with homework, dinner, and early bedtimes for my sweet kindergartner. This year, school is from 7:45-2! I love our long afternoons. We have time for homework AND playtime! The mornings, however, are tricky to get everyone up and out the door for the school bus at 7:12! Joey bounces out of bed wide awake each morning when his Anakin Lego mini figure alarm clock sounds at 6.

My Abby-girl, however, does not bounce as easily out of bed in the morning. In fact, dragging her out of bed each morning has become more and more difficult. Yesterday, poor Danny fought with her and didn't have her dressed until 7. So I decided to give her my old cheap-ie alarm clock to use in an attempt to help her be responsible for getting herself out of bed in the mornings. She wasn't very excited about the "gift" at first, but after we pretended to be asleep and hit the snooze button when it went off, she decided it was big stuff! She proudly showed off her new alarm clock to Grammie and Daddy before bed.

So, did it work??? Like a charm! She bounced right out of bed and brought me her alarm to turn off (she can only manage the snooze button) and was dressed with teeth brushed by 6:15!!! Here's hoping the charm of the alarm clock lasts more than one morning! I think Santa may be bringing her a Littlest Pet Shop alarm clock for Christmas! Instead of an alarm ringing, it meows and barks. Perfect for my sweet girl!

Post Surgery Update

Dear friends,

Thank you SO much for the encouragement and prayers. My surgery today went pretty well. There was a rough patch when there was an area they were working in which wasn't numb. It was quickly corrected, but brought out my barely held in tears. Thankfully, it was the greatest team working on me and they kept me talking and distracted.

My team of doctors (oncology dermatologist, oncologist surgeon, and the best melanoma oncologist in AZ) talked about my case and they agree that my next step is localized radiation. So I will be meeting with a new member of my team in the next week or two, a radiation oncologist with hopes of beginning radiation on my back as soon as my incisions heal.

For the next few days, I will practice taking it easy and following some lifting restrictions. I'm not the best at this, so wish me luck!

My history with Melanoma

2009

September 15  Dermatologist removes "unconcerning mole" from my back

September 17  Diagnosed with Malignant Melanoma

October 2  Wide excision of mole area and sentinel lymph node removal in left and right groin

October 21  Removal of all lymph nodes from left groin

December 16  Port install and first high dose interferon treatment

2010

January 12  Finish high dose interferon treatment

January 19  Begin lower dose self injections

June 18  Port removal (horrible experience!)

June 30, 2010 Danny begins new job

August 9, 2010 Joey begins kindergarten

December 24, 2010 Last dose of Interferon

December 30, 2010 CT/MRI

January 7, 2011 Appointment with Dr. Cranmar, told a tumor was found on CT

January 21, 2011 Surgery to remove tumor

February 3 Clean CT scans

March 14, 2011 Begin DERMA trial

June 3, 2011 Clear CT scan

June 16, 2011 See Warneke about concerns of lumps on surgery scar

July 6 Surgery to remove tumors

August 8 Joey begins first grade, Abby begins kindergarten

August 26, 2009 Clear Scan

September 12, 2011 Derm appointment finds recurrence of lumps under scar

September 26, 2011 Surgery to remove tumors

Recurrence three pre-surgery update

I am going in tomorrow for removal of tumors on my back. It is pretty clear that this is another Melanoma recurrence. We will need to come up with a new treatment plan in the next few weeks. For now I appreciate prayers for a simple but complete removal tomorrow.
God is as good as he was when I was given my cancer free designation 4 weeks ago. We continue to ask Him to guide us in each new step.
I read this week that this is the "year of melanoma" and that advances in melanoma are being made "at light speed." If you'd like to show your support, we'd love for you to come walk with team ¡Mela-no-mas! or contribute to our team. Information is found in the link below.
I also would LOVE to know you are praying for me if you are willing to comment. Thanks for loving my family and walking with us through this so often discouraging journey.

http://fightmelanomatoday.org/teams/%C2%A1mela-no-mas/

Interferon Day 3 and the weekend

Finishing up my first week of Interferon was pretty easy. I got a private room for my treatment on Friday which mean I got a real bed and a TV! At the end of my treatment, the access to my port was removed along with the gauze covering my two incisions. I'm pretty bruised, but the incisions aren't bad. I have numbing cream to prepare the area to be accessed again on Monday. I'm a little nervous about that process! Friday afternoon was much like Thursday. I slept until Danny got home and then felt good for the evening.

Saturday I woke up feeling good and normal! It was a nice surprise. We took it easy for most of the day and went out to dinner with my parents and then took the kids to Frost. It was warm enough to be out without jackets and walking around the shopping center with the kids was a blast! It was a totally unexpected gift to feel so good!

It was a surprise on Sunday to wake up feeling blah. I had a headache and shakes when I woke up (a little like low blood sugar shakes, but less severe.) I fought fatigue and dizziness most of the day. Kinda lame, but I'm going to have to learn to take advantage of the good days and rest on the bad. Tomorrow begins my first full week of treatment, I appreciate your prayers!

Interferon day 2

Yesterday I woke up feeling great! My port was sore (I have two incisions that need to heal.) So I took some pain meds and got ready for the day. I even felt good enough to help the kids get dressed for school. My sweet friend Tina picked me up and drove me to The Cancer Center with her 11 month old adorable son Timothy. Danny stayed home to finish getting the kids ready for school and drop them off. I got my port plugged in and set up with my pre-interferon pepcid and benedryl. Filled the nurse in on my side effects from Wednesday. She hooked me up with numbing cream to prepare my port for the new needle on Monday (they'll take out the access today.) And Agnes and Carrie (NP and nurse who work with my oncologist) came to visit me and wrote a prescription for anti-nausea meds for me. The benedryl knocked me out quickly after that and I slept through the rest. Danny picked me up and dropped me off at home. I made him pick up the anti-nausea meds for me, which of course I didn't need then. I slept until Danny came home and felt good last night! The kids spent the night at my folks which makes the morning easy for us!

Today I'm looking forward to being finished for the week! Getting the port access out so I can shower (my hair is GREASY!) Removal of the bandages on my port wounds (the tape is itchy!) Playing with the kids this weekend and celebrating that so far I feel MUCH better than I expected to! I have been warned that the effects of the Interferon can be cumulative, so I may end up crashing more than I want to. Time to get socks and shoes on and head out for day 3!

Thanks for the prayers!!! (this hasn't been proof read, forgive me!)

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Port and Interferon Day 1

A very quick update before I get ready to head to The Cancer Center again this morning. Yesterday went about as well or better than I hoped. Having the port placed was slightly more traumatic than I anticipated. Mostly because the schedule was messed up and I was in the OR all prepped on the cold, cold table for a LONG time before the Dr showed up and they gave me the "I don't care what you do" drugs. I actually have a double port which is allowing my chemo to go faster! The other patients in the room with me yesterday were jealous and my nurse was delighted. 

The facitity and nurse were awesome yesterday. The other patients were very warm and sweet too. One of my pre drugs is benedryl, so I slept for most of my infusion. I'd guess that will be common. I got the shakes as we left, but they went away quickly. I was still pretty tired, so I went straight to bed when we got home. At home, my stomach got upset and I got sick a couple times. We got home at around 5 and it was bad until about 8:30 when Danny brought me my next dose of pain killers and benedryl. After that I felt better, snacked a little, and fell asleep and was out most of the night. I'm feeling good this morning, other than my port being sore. 

Thanks to everyone for the prayers. Today my treatment is at 9. Danny will bring me home afterward and I'll be on my own for the afternoon. (Hopefully I'll just sleep.) The first day is supposed to be the worst and it's behind me! Hurray!

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